Cody Lee is a WHUS family member who was recently diagnosed with Non-Hodgekins Lymphoma. He has decided to keep everyone up-to-date with his experience by occasional postings on WHUS.org. Cody joined WHUS in the summer of 2010 and is currently a sophomore at UConn. If you'd like to get in touch with him, you can email him here. Follow Cody's posts here.
There has been quite a lot going on in the past two weeks, unfortunately, I haven’t written them down. This is because I’ve felt really horrible half the time and couldn’t motivate myself to write, and I’ve felt wonderful the other half of the time, and took full advantage of it to go out and have fun. I’ve had enough good days in a row now to take a break from the fun and get some work done. When I last posted, I had technically started remission. I should elaborate on this fact. Because all the cancerous masses are gone, I am considered to be in the first stage of remission. However, because I have lymphoma, we can’t be sure that there aren’t still cancer cells circulating in my lymph system. Because of this fact, I’m still receiving chemotherapy as scheduled, including the prophylactic intrathecal chemotherapy, which is a fancy way of saying they put chemo in my spine just to prevent me from getting cancer in my brain. However, my oncologist consulted with some others and they plan on reducing it to 2 more at most. There is also a chance that I’m done with it entirely, but I don’t want to get my hopes up too much just yet. As far as the general chemotherapy that they inject into my chest port, they still have the plan for the full 4 rounds, but in the event that my next PET scan comes back clear, they’ll stop at 3. Right now, I’m half way done with round 2 so this means that as long as my masses stay gone, I’ll be done with chemo after the third round. The odds of my masses coming back are extremely low, and they don’t expect that to happen, so I think it’s safe to say that I’m halfway done with treatment. May 24 is marked on my calendar as my first day being done with chemo, so I’m pretty optimistic. That’s it for now, I don’t know when I’ll have the energy to post again but, as always, I’ll keep everyone posted.